I always believed everything my mother told me.
When I was five years old, she would catch me misbehaving even when she wasn’t looking at me. When I asked her how she knew what I was doing, she told me she had eyes in the back of her head. I’d climb up on the couch behind her and comb through her hair with my fingers, checking her scalp and the back of her neck for those elusive eyes.
When I was six, my mother told me that if I drank pickle juice, I would learn to whistle. I’m pretty sure I drank a quarter of the jar before her cackling laughter clued me in to the joke.
When I was ten, she told my brother that the liquid center bubble gum he loved so much was made out of the blood of bad children. We anxiously read the ingredient list, trying to figure out what “xylose” meant.
On May 4, 2016, she was beginning her 4th day in the hospital. My mom was hallucinating and delirious. The cancer that had ravaged her body had spread to the last bastion beneath her skull. The radiologist said that at a quick count there were at least 14 to 16 different metastatic areas in her brain.
“I accidentally erased your face,” she told me. “I’m sorry. You’re my daughter. You should have a face.” I walked into the bathroom just to make sure it was still intact. Because I always believed her.
My mother asked, “What do you want me to bring? Since I’m leaving here early.” She hadn’t eaten anything substantial in at least a week. She spent most of her time asleep, and the rest of it easily agitated. Her pulse rate had been high for a few weeks. Every single checklist on the Internet had tried to prepare me for the inevitable. The doctors were discharging her to hospice care because there was nothing more they could do for her.
So I held her hand, choked back tears, and told her she didn’t need to bring anything.
She rolled her eyes, and barked a frustrated laugh that told me I was being ridiculous.
“Damnit, Devon,” my mother said. “I’m not dying!“
I believed her.
That was 1:27 PM. Around three hours later — in the corner of my living room, with the ancient painting of the family guardian angel watching over her, and the pink psychedelic blanket on which all of us had crawled around as babies at her feet — my mother would take her last breath.
*
In her book The Year of Magical Thinking, Joan Didion writes:
“If the dead were truly to come back, what would they come back knowing? Could we face them? We who allowed them to die? The clear light of day tells me that I did not allow John to die, that I did not have that power, but do I believe that? Does he?”
It’s been 16 days, and I’m still blaming myself for everything. I’m still second-guessing the choices that I made on her behalf, and I’m still wondering what exactly I could have done differently to create a different outcome. Despite the fact that there was a team of amazing people supporting mom every step of the way, and despite the fact we discussed our few options at length and came to a unified consensus — I still think it’s my fault. It’s my fault for not listening to my intuition and getting her to the hospital earlier. It’s my fault for not getting more information from the doctors earlier on in the process. It’s my fault for not encouraging her to theorize about the afterlife back when the shock of the terminal diagnosis was too fresh for me to accept. It’s my fault for not asking for an additional dose of morphine before we left the hospital that day. It’s my fault for not being more prepared and educated on how to care for her. It’s my fault for not forcing her to eat more or drink more. It’s my fault for sending my brother out to get the morphine prescription filled so that he wasn’t there with her at the very end. It’s my fault for making her ride home on that goddamned ambulance.
Halfway up I-75 on the way to my house, the ambulance pulled over so that I could climb in the back with Mom. They weren’t supposed to do that. They said she was highly agitated. I held her hand, explained to her where she was, what was happening. I told her to think back on her mindfulness meditation practices — to breathe in deeply through her nose, to be present and aware of her body. I told her I was there with her. I told her where we were. “We’re on Emory Road — we’re almost to the elementary school. In two minutes, we’ll be at my house.”
“I’m not sure I’ll make it,” my mother rasped. She was convinced she was having a heart attack.
“I don’t think you’re having a heart attack,” I said.
Thirty minutes later, she was gone. The hospice nurse hadn’t even arrived yet. I’d collapsed, wailing and sobbing on the floor beside the hospital bed my husband had set up for her earlier that day — and apologizing to my mother. I’d obviously done everything wrong. Otherwise, she would still be alive.
*
Grief is strange in the digital age. My mom is still on Facebook. I still send her messages from time-to-time — it was, after all, one of our preferred methods of communication, especially in these last couple of years. I keep waiting for her avatar to pop up at the bottom of the thread, showing she’s finally caught up with what I’ve sent her. But her picture remains fixed right after she said, “Just don’t forget my Icee!” on April 17.
My budgeting software shows the transaction at Pilot on the same day. One dollar, thirty cents.
I carry her phone around with me almost everywhere I go. I don’t want to turn it off, but I can’t bear to check off any of the notifications. The lock screen tells me that she has 99 new notifications on Facebook and 22 likes on a post she was tagged in. It tells me it’s the last chance to check today’s Timehop. I open her Kindle app, and it defaults to a sample of Dying to be Me: My Journey from Cancer, to Near Death, to True Healing. I look in her library, and it shows she purchased and downloaded my novel — but never felt up to reading it.
I carry her phone around like it’s one of the communication devices from the “Silence in the Library” episode of Doctor Who. For those not familiar with the series, after a person dies in this episode, a copy of their consciousness is temporarily held in these devices for a short time after death, and they can communicate with the living. This phenomenon is referred to as “data ghosting.”
I wander around her empty house, looking for a hard drive to which I can upload her consciousness. Instead, I queue up her Spotify playlists, and it appears to all who follow her that she’s still rocking out to the same old tunes.
*
I’ve been spending a lot of time at my mother’s house these past few weeks. In theory, I’m going over there to rummage through the boxes we never had the chance to unpack because her health deteriorated so rapidly after the move here. I tell everyone that I’m sorting out things the family will probably find valuable or important, and trying to box up the rest. Or going through paperwork to find important things like mortgage statements and car titles that are imperative to the executor of the estate during the probate process.
In reality, I wander from room to room. I pick up a journal — the first twenty or so pages have been scribbled all over, but the rest of the book is blank. There are at least thirty books like this around her house. I read the last line of the last page — “What if I never get better” — there isn’t even a period to mark the end of this thought. I read another journal — this one typed up and slipped into sheet protectors:
“I guess the most significant moment of my life was giving birth to my daughter. That day changed my life. Everyday with her has been incredible. I remember how much I wanted her. How I knew that what I was doing was important, the most important thing I would ever do.”
On another sheet of paper, she’s scribbled: “Body as a vehicle — consciousness-limiting vehicle – limited by the body,” and “Nothing is ever created or destroyed — energy has always been continuous.”
I comb through the hard drives of her computer for any important-looking files. I find a video recorded in 2015. I don’t think I’ve ever seen this video, even though she mentions me by name. She’s addressing me in the video. She’s showing me the crazy little apartment she’s renting during her last stay in Phoenix, Arizona. I was in graduate school at the University of Tennessee at the time. She shows me the random pieces of decor in the apartment courtyard: “Folk art at its finest,” she says, sarcastically. She shows me the snails on her back garden door. Inside the apartment, she points the camera to a door in the kitchen. “That’s actually a pantry,” she says, “but I have co-opted it for BOOKS, of course.”
And I think, who does this? Who take the time to film the entire contents of their apartment just because they know it will amuse and delight their adult daughter?
My mother. She did that. Because she loves me.
*
I think I know what it is I’m looking for, why I wander aimlessly through her house every day while the girls are at school. I’m looking for absolution. Something that assures me that none of this was my fault. Evidence that she’s at peace with the universe. Proof that even if I did mess all of this up, she’s going to love me anyway. Testimony that’s there’s some rhyme or reason to all of this madness.
Mom had stopped having long conversations with me a couple of weeks before she died. She simply didn’t have the energy to keep them up anymore. Before the cancer diagnosis, Mom and I would talk at least once a week, usually on Sunday. We’d talk for hours. Whenever we were in the same room with each other, we’d talk nonstop. Every so often, I’d get stressed or frustrated in these conversations with Mom. Maybe she was having Yet Another Great Big Revelation About Life, or she was sharing Yet Another Unscientifically Supported Claim — for whatever reason, I’d get impatient with it. One night in April, I came home crying to Thomas about all the times I was impatient with her during those conversations.
“I would give anything to have another ridiculously long conversation about her crazy theories about life,” I said. “I would even happily listen to her talk about GMOs or nature spirits or anything — I’d listen to her talk about anything.”
And that’s what I want — that’s what I’m looking for. Another ridiculously long conversation where Mom tells me that it’s okay — she’s figured it all out. For real this time. It’s fine that she had to leave early, because the body is just consciousness-limiting vehicle after all, and she’s okay with it. And besides all that, she knows I did the best I could. And she’d chide me for being so hard on myself like I always am. She’d tell me I did a good job, no matter how it turned out. She’s proud of me, and she loves me. And for all the stuff I feel guilty about — well, she’d remind me that this is what we’ve always done. And she’d also keep her promise to prove to me that consciousness survives death — to give me some sign that she’s still hanging out around here, somewhere.
Instead, there’s a small box of ashes — no bigger or heavier than a sack of flour. And a death certificate. That’s all I get.
*
Except, that’s not entirely true. That’s not all I get. I also have the lucid conversation we had in the emergency room after we discovered that they found abnormalities from the CT scan, and it appeared the cancer had spread to her brain. It was 7am on Sunday, May 1, and I hadn’t slept in 24 hours. I wanted to stay strong, but I couldn’t help but fall to pieces after hearing that news.
“It’s okay,” she told me. “You don’t have to be strong for this.”
I voiced a torrent of audible second guesses. If only I’d pressed the doctors harder when I called asking for advice. I knew in my gut something was wrong. I should have never brought Mom to Tennessee — I should have let her stay in North Carolina. Saying all of this as if I were the person solely responsible for the decisions about her care. Saying all of this as if I’d held Mom at gunpoint and forced her to move.
Then the guilt started. I thought about the fight we’d had on Thursday morning. It was the first day she stopped wanting to sit up. I begged and pleaded with her to sit up and eat some breakfast. She refused. She didn’t want to get up. I was terrified. I joked that she probably wanted me to shut up. She snapped and said, “I want you to stop badgering me!” I got mad and yelled, “Fine!” and took my keys and stormed out the front door. I was probably out on her front porch a total of 15 seconds before realizing how stupid it was and how I had no intention of going anywhere. I wheeled back around and lectured Mom on how important it was for her to eat and keep up her strength, but I backed off overall and let her sleep more.
“I’m sorry I badgered you about eating,” I cried as we waited in the ER room for Mom to be admitted to the hospital for the last time.
“Oh baby, don’t worry about it,” Mom laughed a little. “That’s just what we do.”
So, I have that. And I have songs that I discover on Spotify that are exactly what I need to hear, that reflect exactly how I feel:
“24 Frames”
by Jason Isbell
This is how you make yourself vanish into nothing
And this is how you make yourself worthy of the love that she
Gave to you back when you didn’t own a beautiful thing
This is how you make yourself call your mother
And this is how you make yourself closer to your brother
And remember him back when he was small enough to help you sing
You thought God was an architect, now you know
He’s something like a pipe bomb ready to blow
And everything you built that’s all for show goes up in flames
In 24 frames
This is how you see yourself floating on the ceiling
And this is how you help her when her heart stops beating
What happened to the part of you that noticed every changing wind
This is how you talk to her when no one else is listening
And this is how you help her when the muse goes missing
You vanish so she can go drowning in a dream again
You thought God was an architect, now you know
He’s something like a pipe bomb ready to blow
And everything you built that’s all for show goes up in flames
In 24 frames
It isn’t enough. But I also have to accept that it will never be enough. When I cry and flail about how I wish I had done something differently, Thomas always points out that I’m really just looking for the secret sequence of events that would have magically cured my mother, that would have made it so she never had to die. And he’s right. That’s exactly what I want.
I want that because, three hours before she died, my mom told me that she wasn’t dying.
And I always believed everything my mother told me, even when it wasn’t true.